WELCOME TO THE FIBROUS DYSPLASIA FOUNDATION!
Fibrous Dysplasia Foundation, Inc. (The FD Foundation) is a worldwide, not-for-profit, charitable organization of volunteers whose mission is to provide information, advocacy and support for patients, medical professionals and the general public and promote research for diagnosis, treatment and a cure for Fibrous Dysplasia (FD) and McCune-Albright's Syndrome (MAS), Cherubism and related diseases. Our goal is to improve the quality of life for affected individuals and their families.
Make a donation: https://www.fibrousdysplasia.org/donations.php
EDUCATION: The FD Foundation provides a variety of sources of information about FD, MAS and Cherubism, to further awareness of these diseases:
Fibrous Dysplasia Overview: http://www.fibrousdysplasia.org/index.php?page=10
McCune Albright Syndrome Overview: http://www.fibrousdysplasia.org/index.php?page=13
Diagnosis and Treatment of FD & MAS: http://www.fibrousdysplasia.org/index.php?page=14
Cherubism Overview: http://www.fibrousdysplasia.org/index.php?page=11
FAQ About FD: http://www.fibrousdysplasia.org/index.php?page=16
FAQ About FD Treatment: http://www.fibrousdysplasia.org/index.php?page=17
Living with FD, MAS and Cherubism: http://www.fibrousdysplasia.org/index.php?page=49
The FD Foundation hosts conferences for patients and caregivers/advocates where medical practitioners present the cutting edge of research and clinical practice concerning FD and MAS in a format understandable by the general public.
Conferences: http://www.fibrousdysplasia.org/index.php?page=40
Presentation Downloads: http://www.fibrousdysplasia.org/index.php?page=27
SUPPORT: The FD Foundation offers a community of people familiar with FD, MAS and Cherubism who are available to patients, their friends and families and medical professionals through email. The regular meetings also provide a chance for the geographically dispersed community to come together.
Become a member: http://www.fibrousdysplasia.org/index.php?page=9
Physician Referrals: https://www.fibrousdysplasia.org/referrals.php
Make a donation: https://www.fibrousdysplasia.org/donations.php
RESEARCH: The FD Foundation promotes awareness among bone specialists and other researchers about the need for research into FD/MAS and Cherubism. The FD Foundation assists researchers on FD/MAS and Cherubism in finding participants for on-going research and will also provide research support when funds are available.
Research: https://www.fibrousdysplasia.org/index.php?page=42
See also our LIBRARY OF ARTICLES
ADVOCACY: The FD Foundation advocates fundraising on an individual, corporate and government level in order to promote research into diagnoses, treatments and, ultimately, a cure for FD/MAS.
Advocacy: https://www.fibrousdysplasia.org/index.php?page=43
Fundraising: https://www.fibrousdysplasia.org/index.php?page=41
