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Fibrous Dysplasia Home

 

WELCOME TO THE FIBROUS DYSPLASIA FOUNDATION!

 

Fibrous Dysplasia Foundation, Inc. (The FD Foundation) is a worldwide, not-for-profit, charitable organization of volunteers whose mission is to provide information, advocacy and support for patients, medical professionals and the general public and promote research for diagnosis, treatment and a cure for Fibrous Dysplasia (FD) and McCune-Albright's Syndrome (MAS), Cherubism and related diseases. Our goal is to improve the quality of life for affected individuals and their families.

 

Make a donation: https://www.fibrousdysplasia.org/donations.php

 

EDUCATION: The FD Foundation provides a variety of sources of information about FD, MAS and Cherubism, to further awareness of these diseases:

 

Fibrous Dysplasia Overview: http://www.fibrousdysplasia.org/index.php?page=10

 

McCune Albright Syndrome Overview: http://www.fibrousdysplasia.org/index.php?page=13

 

Diagnosis and Treatment of FD & MAS: http://www.fibrousdysplasia.org/index.php?page=14

 

Cherubism Overview: http://www.fibrousdysplasia.org/index.php?page=11

 

FAQ About FD: http://www.fibrousdysplasia.org/index.php?page=16

  

FAQ About FD Treatment: http://www.fibrousdysplasia.org/index.php?page=17

 

Living with FD, MAS and Cherubism: http://www.fibrousdysplasia.org/index.php?page=49

 

The FD Foundation hosts conferences for patients and caregivers/advocates where medical practitioners present the cutting edge of research and clinical practice concerning FD and MAS in a format understandable by the general public.  

 

Conferences: http://www.fibrousdysplasia.org/index.php?page=40

 

Presentation Downloads: http://www.fibrousdysplasia.org/index.php?page=27


SUPPORT: The FD Foundation offers a community of people familiar with FD, MAS and Cherubism who are available to patients, their friends and families and medical professionals through email. The regular meetings also provide a chance for the geographically dispersed community to come together.

 

Become a member: http://www.fibrousdysplasia.org/index.php?page=9

 

Physician Referrals: https://www.fibrousdysplasia.org/referrals.php

 

Make a donation: https://www.fibrousdysplasia.org/donations.php


RESEARCH: The FD Foundation promotes awareness among bone specialists and other researchers about the need for research into FD/MAS and Cherubism. The FD Foundation assists researchers on FD/MAS and Cherubism in finding participants for on-going research and will also provide research support when funds are available. 

 

Research: https://www.fibrousdysplasia.org/index.php?page=42

 

See also our LIBRARY OF ARTICLES

 

ADVOCACY: The FD Foundation advocates fundraising on an individual, corporate and government level in order to promote research into diagnoses, treatments and, ultimately, a cure for FD/MAS. 

 

Advocacy: https://www.fibrousdysplasia.org/index.php?page=43

 

Fundraising: https://www.fibrousdysplasia.org/index.php?page=41

 

 

 

 

 

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