Fibrous Dysplasia Foundation

WELCOME TO THE FIBROUS DYSPLASIA FOUNDATION!

Fibrous Dysplasia Foundation, Inc. (The FD Foundation) is a worldwide, not-for-profit, charitable organization of volunteers whose mission is to provide information, advocacy and support for patients, medical professionals and the general public and promote research for diagnosis, treatment and a cure for Fibrous Dysplasia (FD) and McCune-Albright's Syndrome (MAS), Cherubism and related diseases. Our goal is to improve the quality of life for affected individuals and their families.

STAY INFORMED!

Go to the Foundation News side bar or click on links to pages about the: 2010 Scientific Meeting, Patient Conferences, Advocacy, Fundraising and our development of a Registry/Biorepository and investment in research!

Make a donation!

PREPARATIONS ARE UNDERWAY FOR THE

5^TH FD FOUNDATION PATIENT & FAMILY CONFERENCE ON FD, MAS & CHERUBISM

Dates: Saturday October 2 (afternoon) and Sunday October 3 (morning).

Location: Hyatt Regency - Bethesda, 7400 Wisconsin Ave, Bethesda, MD. (301-657-1234). The Hyatt Regency is above the Bethesda METRO stop on the Red Line of the Washington subway system.

Cost: $25 per individual / $40 per family.

Anticipated Events: The FD Foundation will provide the same cutting edge information as we always have, but in a new format to encourage more interaction among attendees.

Presentations by Clinical and Scientific Experts about endocrine issues and FD & MAS, orthopedic issues and FD, managing craniofacial FD, pain management, and cherubism.
Round-table Discussions for patients and parents to share questions, insights and strategies.
Informal Group Dinner and Breakfast (extra charge).
Go to CONFERENCES for more information.

$20,000 SCIENTIFIC CONFERENCE CAMPAIGN

With NIH, the FD Foundation is hosting an International Scientific Conference with over 25 experts in FD, MAS and cherubism to establish standards of care, future research goals and determine parameters for a patient registry / biorepository. The results will be published in open source journals, which will allow all patients and all physicians worldwide to download the publications free of charge. This is an extremely important conference which will move us closer to a cure and better treatments.

ANNOUNCING A NEW GRAND PARENT MATCH TO HELP US MEET OUR TARGET! !

Thanks to our many generous donors we are happy to announce that we have raised over $12,000. One grandparent is offering to match all FUTURE donations to meet our $20,000 goal. This means your donation will be doubled! Please donate toward this very important cause and note grandparents match.

QUICK LINKS ON THIS WEBSITE

FOR PATIENTS

Fibrous Dysplasia Overview

McCune Albright Syndrome Overview

Diagnosis and Treatment of FD & MAS

Cherubism Overview

FAQ About FD

FAQ About FD Treatment

Living with FD, MAS and Cherubism

FIBROUS DYSPLASIA FOUNDATION BROCHURE

FIBROUS DYSPLASIA FOUNDATION BROCHURE - SPANISH

See also our LIBRARY OF ARTICLES. Links to specific subject matter are on the left margin. Feel free to download them and share with your physician.

The FD Foundation hosts PATIENT & FAMILY CONFERENCES where medical practitioners present the cutting edge of research and clinical practice concerning FD, MAS and Cherubism in a format understandable by the general public.

Obtain current Patient Conference information.

Review our selection of Presentation Downloads - Podcasts.

The FD Foundation offers a community of people familiar with FD, MAS and Cherubism who are available to patients, their friends and families and medical professionals through email. The regular meetings also provide a chance for the geographically dispersed community to come together.

Become a member and receive email updates

Participate in the on-line support group.

Find an experienced medical specialist.

The FD Foundation promotes awareness among bone specialists and other researchers about the need for research into FD/MAS and Cherubism. The FD Foundation assists researchers on FD/MAS and Cherubism in finding participants for on-going research and will also provide research support when funds are available.

Learn about the 2010 Scientific Meeting.

Learn what the FD Foundation is doing to support research and how you can be involved.

The FD Foundation advocates fundraising on an individual, corporate and government level in order to promote research into diagnoses, treatments and, ultimately, a cure for FD/MAS.

Learn about FD Foundation efforts to gain federal support.

Find out about how you can help raise funds.

FOR PHYSICIANS

Diagnosis and Treatment of FD & MAS

Become a member to receive email updates.

Find FD, MAS and Cherubism experts to guide you in the Physician Referral Database.

Share your knowledge: submit an application to the Physician Referral Database.

See also our LIBRARY OF ARTICLES. Links to specific subject matter are on the left margin.

Last Update 08/12/2010 Please report problems on this website to info@fibrousdysplasia.org