Searching for medical specialists who know how to treat FD, MAS and Cherubism is a pursuit that ties members of the FD Foundation together. Too often we find that no one is quite sure what the standards of care for our bone conditions are. One physician says “Do X”, another says “Do Y” and a third says “wait and see.” Or, even worse, no doctor near where we live has seen a case of FD, MAS or Cherubism before and they are at a loss and so are we!

The agenda of the meeting is to develop a consensus on the best current medical and surgical treatment of fibrous dysplasia, MAS and Cherubism, to define areas of focus for future research, and to establish parameters for a registry/bio repository to aid research. Participants in the meeting include pediatric and adult orthopedic specialists, cranio facial surgery, plastic surgery, endocrinology,  and specialists in stem cells, microbiology and pathology  from the US, Israel, Italy, and Taiwan.