The sixth Fibrous Dysplasia Foundation Patient & Family Conference was held in New York City at the New York University Langone Medical Center, on October 25th and 26th. Conference Videos are available on YouTube, and in this news post.
Fibrous Dysplasia Foundation, Inc. works to improve the quality of life for individuals who have FD or MAS by providing a community of support for patients with FD/MAS and their family and friends where they can share their stories, trade ideas, experiences and viewpoints and obtain information about FD/MAS. Conferences are a critical component of the way we enact our mission.
FD Foundation conferences present the cutting edge of research by the scientists conducting it and the state of clinical practice by current practitioners in lay terms understandable by patients and those who support and care for them. Conferences held in 2007 and 2008 involved medical presentations on the following topics: the genetics and variability of disease symptoms for FD and MAS, orthopedic treatment, endocrine issues in adults and children, phosphate wasting, the use of bisphosphonates, and pain management, and craniofacial treatment. Time is provided for audience questions.
Attendees report conferences are clearly organized and relevant. Speakers work at the right level – their presentations are not too simplified yet still understandable by the layman, presenters clearly answer questions, the price is very affordable and the food is great, and the conference setting, particularly meals, offer a great opportunity to meet others with similar problems.
If you were able to join us, we hope you enjoyed the conference. Sign up for our mailing list you’d like alerts about upcoming conferences.