February 20th 2020 marks the beginning of the very first FD|MAS Global Awareness Week. We’re celebrating by asking patients, caregivers, and advocates to share their vision for a world without FD|MAS. What would your life look like if this horrible disease were cured? Would you…
- Have perfect attendance at school?
- Be a college football star?
- Go to tons of Rock concerts without fearing about damaged hearing or debilitating headaches?
Those who don’t know about FD|MAS may not understand how this disease impacts people in the everyday–share your vision by sharing what your world would be like in a world without FD|MAS