This past fall, FDF livestreamed two Educational Webinars over Facebook for free. As an organization, FDF thought it was important to bring educational programming to the fibrous dysplasia and McCune-Albright community and we were thrilled to bring the experts to our community.
Two webinars took place and were well attended by the patient community. A New Clinical Pathway for FD|MAS Care took place on October 30th, 2019 with presenters Drs. Michael Collins, the Senior Clinical Investigator of the Skeletal Disorders & Mineral Homeostasis Section with the NIH’s NIDCR, and Dr. Alison Boyce who has generously served as a nonvoting member of the FD Foundation Board of Directors since its incorporation with Dr. Alison Boyce, a pediatric endocrinologist with the NIH and is the principal investigator for the NIDCR’s natural history study of FD/MAS. These two clinicians and researchers are widely recognized as the leading experts on this disease and have been generous collaborators with FDF over many years.
The second webinar was held in November 15th, 2019 from Nemours Children’s Hospital in Orlando Florida. Presenters Drs. Robert Stanton and Jason Malone shared their expertise on three important topics: Orthopedic Care, Choosing a Surgeon, and Scoliosis and FD|MAS. Dr. Stanton is a generl pediatric orthopedics expert who has worked tirelessly to improve the care of FD|MAS patients. Dr. Malone is training with Dr. Stanton and hopes to continue Dr. Stanton’s legacy of leadeship and collaboration in service of this rare disease population.
During the Livestream from Orlando, FL with close to 700 virtual attendees, the Fibrous Dysplasia Foundation awarded the 2019 Constellation award to Dr. Robert Stanton by FDF Board Director, Leah Suprise. Dr. Stanton is renowned for his work with the FD community and has graciously shared his skills and insights with the FDF for over a decade.
Within a week of the webinars presentation, thousands of viewers had already watched, many of whom watched live so that they could ask questions of the experts in real time. In light of the warm reception these webinars received, FDF hopes to hold more in the future.
Special thanks to Drs. Michael Collins, Alison Boyce, Jason Malone, and Robert Stanton.
Special thanks to the team behind the talent: Peggy Parish, Peggy Carter, and Janice Sager at Nemours, and Tovah Burstein.
Do you have an idea for a topic you’d like to present or a request for a topic you’d like to see covered? Reach out to Tovah via TBurstein@fibrousdysplasia.org