The Fibrous Dysplasia Foundation is responding to the needs of Fibrous dysplasia/McCune-Albright Syndrome (FD/MAS) community by sustaining our operations. We are launching a campaign to raise critically needed funds. Our work is completely supported by the generosity of donors. COVID-19 has presented FDF with complex challenges and we are unable to fundraise from our donor base to keep our operations on-going.
#GivingTuesdayNow is a global day of giving and unity, set to take place on May 5, 2020 as an emergency response to the unprecedented need caused by COVID-19. The day is designed to drive an influx of generosity, citizen engagement, business and philanthropy activation, and support for communities and nonprofits around the world.
At a time when we are all experiencing the pandemic, generosity is what brings people of all races, faiths, and political views together across the globe. Generosity gives everyone power to make a positive change in the lives of others and is a fundamental value anyone can act on. It’s a day for everyone around the world to stand together and give back in all ways, no matter who or where we are.
Like non-profits everywhere, FDF is struggling. Our community is struggling. We are unsure what our future will look like. Participating in #GivingTuesdayNow as a way to have fun, give back, and lift each other up during a difficult time.
Executive Director Adrienne McBride states, “We know many of you are facing uncertainty in your lives, and we aim to be there for you in all the ways that you have come to trust us. We ask that those of you who are able to will continue to support FDF so that our work–the very immediate of answering patient questions, and the longer vision of advancing cutting-edge research for evidence-based treatments–may continue beyond this current moment.”
“As a global community, we can mourn this moment of extreme crisis while also finding the opportunity to support one another. We each have the power to make an impact with acts of generosity, no matter how small, and to ensure the sustainability of organizations and services that are crucial to the care and support of our communities,” said Asha Curran, CEO of GivingTuesday. “
#GivingTuesdayNow is a chance for us to stand united and use grassroots generosity to show that we are all in this together, beginning to end. Even as many face financial uncertainty, generosity is not about size. From calling an elderly neighbor to chat to offering translation help; from showing gratitude to our healthcare workers to donating to your local food bank, every act of kindness is a beacon of hope in this crisis. We all have something to give, and every act of human consideration and kindness matters.”
Those interested in joining Fibrous Dysplasia’’s #GivingTuesdayNow efforts can visit tinyurl.com/Bingo4Bones to learn more.
About Fibrous Dysplasia Foundation
The Fibrous Dysplasia Foundation (FDF) is a community-led 501(c)3 nonprofit that fights back against fibrous dysplasia, McCune-Albright syndrome (FD/MAS). FD/MAS is a rare, chronic, debilitating disease with no known treatment or cure. FDF serves people affected by FD/MAS through programs of research, education, and advocacy. EIN 02-0715210 To learn more, visit fibrousdysplasia.org.
GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. GivingTuesday was created in 2012 as a simple idea: a day that encourages people to do good. Over the past eight years, it has grown into a global movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity.