Running a foundation is a big job— We can only do it with the support of community members like you. We are currently seeking volunteers in the following areas.
Fundraising is absolutely essential for the foundation to be able to fulfill its mission.
Our Fundraise page has more information about how you can volunteer through fundraising. All interested people can also email us at info AT fibrousdysplasia DOT com. We can help you think through ideas, plan and organize your initiative!
We are actively seeking fundraisers for the 2019 Million Dollar Bike Ride, after 2015, 2016, 2017 and 2018 successes.
We seek individuals to assist in optimizing fibrousdysplasia.org web design and SEO.
We’re also interested in those who could read and summarize medical research for our research library.
If you are fully bilingual, we could use your assistance in translating certain materials.
We are interested in refreshing our logo, and creating a few new reusable, branded images (e.g. an email newsletter header image, social media icons/banners). If you have skills with PhotoShop, or other image editing software, we would love to hear from you!
The FD Foundation seeks volunteers to help create opportunities for patients and caregivers to meet and develop extended support systems.
Events can be as simple as meeting at a predetermined location (the zoo, a restaurant, a park) or more elaborate (such as potluck meal at someone’s home). To talk to someone about initiating an activity, please send a message to firstname.lastname@example.org and explain where you live and what you would like to do. The FD Foundation can identify how many individuals live nearby you and send out a invitation for you.
The Board of Directors governs the direction of the FD Foundation and members are deeply involved in the development of projects. Terms are three years. We seek adult patients, caregivers or medical personnel to serve in this capacity.
We also seek individuals to help research potential funding sources and assist with grant writing. To volunteer please send a message to email@example.com and explain your capabilities and interests.