Led by Senator John Kerry and Congressman James McGovern of Massachusetts, six senators and 7 congressional representatives sent a letter to the head of the NIH, Dr. Francis Collins in March, 2010, urging the NIH to continue funding research on rare diseases like FD/MAS.
|Signing Senators||Signing Congressional Representatives|
|John F. Kerry (Massachusetts)||Jim McGovern (Massachusetts)|
|Daniel K. Inouye (Hawaii)||William D. Delahunt (Massachusetts)|
|Jeff Merkley (Oregon)||Richard E. Neal (Massachusetts)|
|Patty Murray (Washington)||John W. Olver (Massachusetts)|
|Jeanne Shaheen (New Hampshire)||Raul M. Girjalva (Arizona)|
|Ron Wyden (Oregon)||David Wu (Oregon)|
|Bill Cassidy (Louisiana)|
Update: NIH Director Francis Collins replied! His supportive response is below.