The FD/MAS Patient and Family Conference has been Postponed until 2020
A Message from FDF’s President
President, Fibrous Dysplasia Foundation
About FDF Patient & Family Conferences
Fibrous Dysplasia Foundation works to improve the quality of life for individuals who have FD or MAS by providing a community of support for patients with FD/MAS and their family and friends where they can share their stories, trade ideas, experiences and viewpoints and obtain information about FD/MAS. Conferences are a critical component of the way we enact our mission.
FD Foundation conferences present the cutting edge of research by the scientists conducting it and the state of clinical practice by current practitioners in lay terms understandable by patients and those who support and care for them. In general, attendees report conferences are: clearly organized and relevant, speakers work at the right level – their presentations are not too simplified yet still understandable, presenters clearly answer questions, the price is very affordable, the food is great, and the conference setting, particularly meals, offer a great opportunity to meet others with similar problems.
Recordings of that previous conferences are available in our Video/Podcast Library.
In years when the Fibrous Dysplasia Foundation does not hold a conference, it sometimes offers webinars on specific topics. The first webinar was offered December 2010, by Dr. Michael Collins. Sign up for our mailing list to register with us and ensure you are informed about conference and webinar opportunities.