FDF is Thrilled to Announce our 2019 Patient and Family Conference
November 16-17, 2019 in Orlando Florida
Topics to be covered include clinical and pre-clincal research advances as well as craniofacial, endocrine, orthopeadic and pain care. As with previous years, there will be a patient-only reception as well as a full-group dinner.
Dr. Alison Boyce, National Institute of Dental and Craniofacial Research, National Institutes of Health
Dr. Andrea Burke, University of Washington
Dr. Robert Stanton, Nemours Children’s Clinic
Dr. Lynn Lindaman, pediatric orthopaedist with a practice in Des Moines, Iowa and an individual with FD
Leah Suprise, FDF Board Member and parent of a patient
Raya Dawn, patient speaker
Lauren Rachelle Foster, FDF Board Member, patient speaker
Conference Site and Accomodations
The Conference will take place at the Hilton Garden Inn at Seaworld. Some rooms have been set aside at a discounted rate, reserve early via this link to receive this discount.
The Fibrous Dysplasia Foundation expresses its sincerest thanks to the sponsors who made this event possible.
About FDF Patient & Family Conferences
Fibrous Dysplasia Foundation works to improve the quality of life for individuals who have FD or MAS by providing a community of support for patients with FD/MAS and their family and friends where they can share their stories, trade ideas, experiences and viewpoints and obtain information about FD/MAS. Conferences are a critical component of the way we enact our mission.
FD Foundation conferences present the cutting edge of research by the scientists conducting it and the state of clinical practice by current practitioners in lay terms understandable by patients and those who support and care for them. In general, attendees report conferences are: clearly organized and relevant, speakers work at the right level – their presentations are not too simplified yet still understandable, presenters clearly answer questions, the price is very affordable, the food is great, and the conference setting, particularly meals, offer a great opportunity to meet others with similar problems.
Recordings of that previous conferences are available in our Video/Podcast Library.
In years when the Fibrous Dysplasia Foundation does not hold a conference, it sometimes offers webinars on specific topics. The first webinar was offered December 2010, by Dr. Michael Collins. Sign up for our mailing list to register with us and ensure you are informed about conference and webinar opportunities.