Fibrous dysplasia doctor database - Find a specialist / FD Foundation

The Fibrous Dysplasia Foundation maintains a database of doctors with experience treating Fibrous Dysplasia, McCune-Albright Syndrome and Cherubism. It includes a wide range of experienced doctors who treat children and adults, including but not limited to: orthopedics, endocrinology, craniofacial surgery, pain management, and dentistry.

In order to be listed, doctors must complete an application with information about their training, clinical experience and relevant publications. This application is reviewed by the Medical Advisory Board of the Foundation before individuals are listed.

To nominate a doctor for inclusion, please click here to go to our nomination form.

If you are a medical professional and you wish to be included in the database, please click here to go to our application.

Advanced Search Acupuncture (2) Cognitive Behavioral Therapy (2) Cosmetic and Reconstructive Eye Surgery (2) Craniofacial Surgery (10) Dentistry (3) Endocrinology (87) Geneticist (2) Genetics (2) Genetics, Orthopedic surgery (4) Hospice and Palliative Medicine (2) Integrative Medicine (2) Opthamology and Neuro-Opthamology (2) Oral and Maxillofacial (9) Orhtopedic Pathology (6) Orthodontics (2) Orthopaedic Surgery (12) Orthopedic Pathology (10) Orthopedic Surgery (62) Orthopedics (34) Orthopedics Pathology (4) Otolaryngology (2) Pain Medicine (2) Pathology (6) Plastic and Reconstructive Surgery (4) Plastic and Reconstructive Surgery, Oral and Maxillofacial (8) Rehab Medicine (4) Restorative and Prosthetic Dentistry (2) Rheumatology (2) Sort By: ZIP Code ↑ Alison Boyce Address: 20892 Specialty: Endocrinology Company: NIDCR / NIH Address: Skeletal Clinical Studies Unit, CSDB, NIDCR, National Institutes of Health, Bldg. 30, Bethesda, Maryland 20892 Treats: Kids Experience with: FD, MAS Requires referral: No State: MD View Alison Boyce Address: 20892 Specialty: Endocrinology Company: NIDCR / NIH Address: Skeletal Clinical Studies Unit, CSDB, NIDCR, National Institutes of Health, Bldg. 30, Bethesda, Maryland 20892 Treats: Kids Experience with: FD, MAS Requires referral: No State: MD View Amy Potter M.D. Address: 37232 Specialty: Endocrinology Company: Vanderbilt University Medical Center Address: 11136 Doctors Office Tower 2200 Children's Way Nashville, TN 37232 Phone Number: 615-322-7427 Fax: 615-343-5845 Experience with: FD, MAS Requires referral: Yes State: TN View Amy Potter M.D. Address: 37232 Specialty: Endocrinology Company: Vanderbilt University Medical Center Address: 11136 Doctors Office Tower 2200 Children's Way Nashville, TN 37232 Phone Number: 615-322-7427 Fax: 615-343-5845 Experience with: FD, MAS Requires referral: Yes State: TN View Andrea Burke Address: 98104 Specialty: Dentistry, Oral and Maxillofacial Address: Andrea B. Burke, DMD, MD Oral and Maxillofacial Surgery Harborview Medical Center 325 9th Ave, Seattle, WA 98104 Treats: Adults, Kids State: WA View Anna Spagnoli Address: 60612 Specialty: Endocrinology Company: Rush Pediatric Specialty Care Address: 1725 W. Harrison St. Chicago IL State: IL View Anna Spagnoli Address: 60612 Specialty: Endocrinology Company: Rush Pediatric Specialty Care Address: 1725 W. Harrison St. Chicago IL State: IL View Benjamin Alman M.D. Address: M5G1X8 Specialty: Orthopedics Company: SickKids Address: Bone Health Centre 555 University Ave Toronto, CA M5G1X8 416-813-7980 benjamin.alman@sickkids.ca Phone Number: 416-813-7980 Experience with: FD Requires referral: No State: INTL View Benjamin Alman M.D. Address: M5G1X8 Specialty: Orthopedics Company: SickKids Address: Bone Health Centre 555 University Ave Toronto, CA M5G1X8 416-813-7980 benjamin.alman@sickkids.ca Phone Number: 416-813-7980 Experience with: FD Requires referral: No State: INTL View Bonnie Padwa M.D. Address: 02115 Specialty: Oral and Maxillofacial Company: Children's Hospital Boston Address: Children's Hospital Boston Dept of Plastic & Oral Surgery 300 Longwood Ave. Boston MA 02115 Phone Number: 617-355-6259 Fax: 617-738-1657 Treats: Kids Experience with: FD, Cherubism Requires referral: Yes State: MA View Bonnie Padwa M.D. Address: 2115 Specialty: Oral and Maxillofacial Company: Children's Hospital Boston Address: Children's Hospital Boston Dept of Plastic & Oral Surgery 300 Longwood Ave. Boston MA 02115 Phone Number: 617-355-6259 Fax: 617-738-1657 Treats: Kids Experience with: FD, Cherubism Requires referral: Yes State: MA View Bryan Moon Address: 77030 Specialty: Orthopaedic Surgery Company: University of Texas MD Anderson Cancer Center Address: 1400 Pressier Street Houston Texas View Bryan Moon Address: 77030 Specialty: Orthopaedic Surgery Address: 1400 Pressier Street Houston Texas View Bryan Moon Address: 77030 Specialty: Orthopaedic Surgery Address: 1400 Pressier Street Houston Texas State: TX View Bryan Moon Address: 77030 Specialty: Orthopaedic Surgery Company: University of Texas MD Anderson Cancer Center Address: 1400 Pressier Street Houston Texas State: TX View Burak Yilmaz M.D. Specialty: Restorative and Prosthetic Dentistry Company: Ohio State Univ., College of Dentistry, Dept. of Restorative & Prosthetic Dentistry Address: 3005S Postle Hall, 305 West 12th Ave. P.O. Box 182357 Columbus OH 43218-2357 Treats: Adults, Kids Experience with: Cherubism Requires referral: Yes State: OH View Burak Yilmaz M.D. Specialty: Restorative and Prosthetic Dentistry Company: Ohio State Univ., College of Dentistry, Dept. of Restorative & Prosthetic Dentistry Address: 3005S Postle Hall, 305 West 12th Ave. P.O. Box 182357 Columbus OH 43218-2357 Treats: Adults, Kids Experience with: Cherubism Requires referral: Yes State: OH View Carol Morris Specialty: Orthopedic Surgery Company: Johns Hopkins Address: 601-N Caroline St Baltimore MD State: MD View Carol Morris Specialty: Orthopedic Surgery Address: 601-N Caroline St Baltimore MD View Carol Morris Specialty: Orthopedic Surgery Address: 601-N Caroline St Baltimore MD State: MD View Carol Morris Address: 21287 Specialty: Orthopedic Surgery Company: Johns Hopkins Address: 601-N Caroline St Baltimore MD State: MD View Cary Mariash Address: 46280 Specialty: Endocrinology Company: Indiana University Health Address: Methodist Medical Plaza North Indianapolis IN View Cary Mariash Address: 46280 Specialty: Endocrinology Address: Methodist Medical Plaza North Indianapolis IN View Cary Mariash Address: 46280 Specialty: Endocrinology Address: Methodist Medical Plaza North Indianapolis IN State: IN View Cary Mariash Address: 46280 Specialty: Endocrinology Company: Indiana University Health Address: Methodist Medical Plaza North Indianapolis IN State: IN View Catherine Dinauer Address: 06510 Specialty: Orthopedic Surgery Company: Yale-New Haven Children's Hospital-West Address: 20 York Street, Ste WP-2 New Haven CT State: CT View Catherine Dinauer Address: 6510 Specialty: Orthopedic Surgery Address: 20 York Street, Ste WP-2 New Haven CT View Catherine Dinauer Address: 6510 Specialty: Orthopedic Surgery Address: 20 York Street, Ste WP-2 New Haven CT State: CT View Catherine Dinauer Address: 6510 Specialty: Orthopedic Surgery Company: Yale-New Haven Children's Hospital-West Address: 20 York Street, Ste WP-2 New Haven CT State: CT View Cemre Robinson Address: 6511 Specialty: Endocrinology Company: Yale University School of Medicine Treats: kids View Cemre Robinson Address: 6511 Specialty: Endocrinology Treats: kids View Cemre Robinson Address: 6511 Specialty: Endocrinology Treats: kids State: CT View Cemre Robinson Address: 1 Gustave L. Levy Pl, New York, NY 10029 Specialty: Endocrinology Company: Icahn School of Medicine at Mount Sinai State: NY View Charles Kim Address: 10016 Specialty: Acupuncture, Integrative Medicine, Pain Medicine Company: NYU Center for Musculoskeletal Care Address: 333 E. 38TH STREET 6TH FLOOR New York, NY 10016 Phone Number: 646-501-7200 Fax: 646-501-7432 Experience with: FD, MAS Requires referral: Unknown State: NY View Charles Kim Address: 10016 Specialty: Acupuncture, Integrative Medicine, Pain Medicine Company: NYU Center for Musculoskeletal Care Address: 333 E. 38TH STREET 6TH FLOOR New York, NY 10016 Phone Number: 646-501-7200 Fax: 646-501-7432 Experience with: FD, MAS Requires referral: Unknown State: NY View Charles Soparker M.D. Address: 77098 Specialty: Cosmetic and Reconstructive Eye Surgery Company: Plastic Eye Surgery Assoc., PLLC Address: 3730 Kirby Drive, #900 Houston TX 77098 Website: http://www.plasticeyesurgery.com Phone Number: 713-795-0705 Treats: Adults, Kids Experience with: FD, MAS, Cherubism Requires referral: Unknown State: TX View Charles Soparker M.D. Address: 77098 Specialty: Cosmetic and Reconstructive Eye Surgery Company: Plastic Eye Surgery Assoc., PLLC Address: 3730 Kirby Drive, #900 Houston TX 77098 Website: http://www.plasticeyesurgery.com Phone Number: 713-795-0705 Treats: Adults, Kids Experience with: FD, MAS, Cherubism Requires referral: Unknown State: TX View Christopher Sperati Address: 21287 Specialty: Pathology Company: Johns Hopkins Hospital Address: 600 N Wolfe Street Baltimore MD State: MD View Christopher Sperati Address: 21287 Specialty: Pathology Company: Johns Hopkins Hospital Address: 600 N Wolfe Street Baltimore MD State: MD View Craig Dufresne M.D. Address: 20815 Specialty: Craniofacial Surgery Company: Craig R. Dufresne, MD, FACS Address: 5530 Wisconsin Ave. Suite 1235 Chevy Chase MD 20815 Website: http://www.cdufresnemd.com Phone Number: 301-654-9151 Fax: 301-654-9727 Treats: Adults, Kids Experience with: FD, MAS, Cherubism Requires referral: No State: MD View Craig Dufresne M.D. Address: 20815 Specialty: Craniofacial Surgery Company: Craig R. Dufresne, MD, FACS Address: 5530 Wisconsin Ave. Suite 1235 Chevy Chase MD 20815 Website: http://www.cdufresnemd.com Phone Number: 301-654-9151 Fax: 301-654-9727 Treats: Adults, Kids Experience with: FD, MAS, Cherubism Requires referral: No State: MD View Daniel Handel Address: 80204 Specialty: Hospice and Palliative Medicine Company: Denver Health Medical Ct Address: Division of Palliative Medicine 777 Bannock St Denver, CO 80204 Phone Number: (303) 602-2714 Treats: Adults, Kids Requires referral: Unknown State: CO View Daniel Handel Address: 80204 Specialty: Hospice and Palliative Medicine Company: Denver Health Medical Ct Address: Division of Palliative Medicine 777 Bannock St Denver, CO 80204 Phone Number: (303) 602-2714 Treats: Adults, Kids Requires referral: Unknown State: CO View David Weber Address: 14642 Specialty: Endocrinology Company: University of Rochester Address: 601 Elmwood Ave Rochester, NY 14642 State: NY View David Weber Address: 14642 Specialty: Endocrinology Company: Golisano Children's Hospital Address: Division of Endocrinology and Diabetes Pediatric Bone Health Program Golisano Children's Hospital University of Rochester School of Medicine & Dentistry Golisano.urmc.edu/pedsbonehealth Website: http://Golisano.urmc.edu/pedsbonehealth Phone Number: 585-275-7744 Treats: Kids State: NY View David Weber Address: 14642 Specialty: Endocrinology Company: University of Rochester Address: 601 Elmwood Ave Rochester, NY 14642 State: NY View Deanna Adkins Address: 27708 Specialty: Endocrinology Company: Duke Children's and WakeMed Children's of Raleigh State: NC View Deanna Adkins Address: 27708 Specialty: Endocrinology Company: Duke Children's and WakeMed Children's of Raleigh State: NC View Dempsey Springfield, M.D. Address: 02114 Specialty: Orthopedic Surgery Company: Massachusetts General Hospital Orthopedic Associates Address: Yawkey 3B, 55 Fruit Street Boston, MA 02114 Phone Number: 617.724.3700 Fax: 617.643.1227 Treats: Adults, Kids Experience with: FD, MAS Requires referral: Yes State: MA View Dempsey Springfield, M.D. Address: 2114 Specialty: Orthopedic Surgery Company: Massachusetts General Hospital Orthopedic Associates Address: Yawkey 3B, 55 Fruit Street Boston, MA 02114 Phone Number: 617.724.3700 Fax: 617.643.1227 Treats: Adults, Kids Experience with: FD, MAS Requires referral: Yes State: MA View Next »

Patients: Please deliver or mail the Physician Referral Application to your doctor with a personal request that she or he participate.

Physicans: Please complete and submit a Physician Referral Application to the FD Foundation by email or postal mail along with your CV. Individuals are listed after review by our Medical Advisory Council, a diverse advisory body includes doctors and researchers who are the experts from around the world in these diseases.

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