The Fibrous Dysplasia Foundation maintains a database of doctors with experience treating Fibrous Dysplasia, McCune-Albright Syndrome and Cherubism. It includes a wide range of experienced doctors who treat children and adults, including but not limited to: orthopedics, endocrinology, craniofacial surgery, pain management, and dentistry.
In order to be listed, doctors must complete an application with information about their training, clinical experience and relevant publications. This application is reviewed by the Medical Advisory Board of the Foundation before individuals are listed.
To nominate a doctor for inclusion, please click here to go to our nomination form.
If you are a medical professional and you wish to be included in the database, please click here to go to our application.
Skeletal Clinical Studies Unit, Skeletal Clinical Studies Unit, Andrea B. Burke, DMD, MD Bone Health Centre Bone Health Centre Children's Hospital Boston Children's Hospital Boston 3005S Postle Hall, 305 West 12th Ave. 3005S Postle Hall, 305 West 12th Ave. 333 E. 38TH STREET 333 E. 38TH STREET Division of Palliative Medicine Division of Palliative Medicine Division of Endocrinology and Diabetes
CSDB, NIDCR,
National Institutes of Health, Bldg. 30, Bethesda, Maryland 20892
CSDB, NIDCR,
National Institutes of Health, Bldg. 30, Bethesda, Maryland 20892
Oral and Maxillofacial Surgery
Harborview Medical Center
325 9th Ave, Seattle, WA 98104
555 University Ave
Toronto, CA M5G1X8
416-813-7980
benjamin.alman@sickkids.ca
555 University Ave
Toronto, CA M5G1X8
416-813-7980
benjamin.alman@sickkids.ca
Dept of Plastic & Oral Surgery
300 Longwood Ave.
Boston MA 02115
Dept of Plastic & Oral Surgery
300 Longwood Ave.
Boston MA 02115
P.O. Box 182357
Columbus OH 43218-2357
P.O. Box 182357
Columbus OH 43218-2357
6TH FLOOR
New York, NY 10016
6TH FLOOR
New York, NY 10016
777 Bannock St
Denver, CO 80204
777 Bannock St
Denver, CO 80204
Pediatric Bone Health Program
Golisano Children's Hospital
University of Rochester School of Medicine & Dentistry
Golisano.urmc.edu/pedsbonehealth
Patients: Please deliver or mail the Physician Referral Application to your doctor with a personal request that she or he participate.
Physicans: Please complete and submit a Physician Referral Application to the FD Foundation by email or postal mail along with your CV. Individuals are listed after review by our Medical Advisory Council, a diverse advisory body includes doctors and researchers who are the experts from around the world in these diseases.