Fibrous dysplasia doctor database - Find a specialist / FD Foundation

The Fibrous Dysplasia Foundation maintains a database of doctors with experience treating Fibrous Dysplasia, McCune-Albright Syndrome and Cherubism. It includes a wide range of experienced doctors who treat children and adults, including but not limited to: orthopedics, endocrinology, craniofacial surgery, pain management, and dentistry.

In order to be listed, doctors must complete an application with information about their training, clinical experience and relevant publications. This application is reviewed by the Medical Advisory Board of the Foundation before individuals are listed.

To nominate a doctor for inclusion, please click here to go to our nomination form.

If you are a medical professional and you wish to be included in the database, please click here to go to our application.

Advanced Search Acupuncture (1) Cognitive Behavioral Therapy (1) Cosmetic and Reconstructive Eye Surgery (1) Craniofacial Surgery (5) Dentistry (2) Endocrinology (37) Geneticist (1) Genetics (1) Genetics, Orthopedic surgery (1) Hospice and Palliative Medicine (1) Integrative Medicine (1) Opthamology and Neuro-Opthamology (1) Oral and Maxillofacial (5) Orhtopedic Pathology (2) Orthodontics (1) Orthopaedic Surgery (3) Orthopedic Pathology (3) Orthopedic Surgery (18) Orthopedics (15) Orthopedics Pathology (1) Otolaryngology (1) Pain Medicine (1) Pathology (3) Plastic and Reconstructive Surgery (2) Plastic and Reconstructive Surgery, Oral and Maxillofacial (2) Rehab Medicine (2) Restorative and Prosthetic Dentistry (1) Rheumatology (1) Sort By: ZIP Code ↑ Alison Boyce Address 20892 Specialty: Endocrinology Company: NIDCR / NIH Address: Skeletal Clinical Studies Unit, CSDB, NIDCR, National Institutes of Health, Bldg. 30, Bethesda, Maryland 20892 Treats: Kids Experience with: FD, MAS Requires referral: No State: MD View Amy Potter M.D. Address 37232 Specialty: Endocrinology Company: Vanderbilt University Medical Center Address: 11136 Doctors Office Tower 2200 Children's Way Nashville, TN 37232 Phone Number: 615-322-7427 Fax: 615-343-5845 Experience with: FD, MAS Requires referral: Yes State: TN View Andrea Burke Address 98104 Specialty: Dentistry, Oral and Maxillofacial Address: Andrea B. Burke, DMD, MD Oral and Maxillofacial Surgery Harborview Medical Center 325 9th Ave, Seattle, WA 98104 Treats: Adults, Kids State: WA View Anna Spagnoli Address 60612 Specialty: Endocrinology Company: Rush Pediatric Specialty Care Address: 1725 W. Harrison St. Chicago IL State: IL View Benjamin Alman M.D. Address M5G1X8 Specialty: Orthopedics Company: SickKids Address: Bone Health Centre 555 University Ave Toronto, CA M5G1X8 416-813-7980 benjamin.alman@sickkids.ca Phone Number: 416-813-7980 Experience with: FD Requires referral: No State: INTL View Bonnie Padwa M.D. Address 2115 Specialty: Oral and Maxillofacial Company: Children's Hospital Boston Address: Children's Hospital Boston Dept of Plastic & Oral Surgery 300 Longwood Ave. Boston MA 02115 Phone Number: 617-355-6259 Fax: 617-738-1657 Treats: Kids Experience with: FD, Cherubism Requires referral: Yes State: MA View Bryan Moon Address 77030 Specialty: Orthopaedic Surgery Address: 1400 Pressier Street Houston Texas State: TX View Burak Yilmaz M.D. Specialty: Restorative and Prosthetic Dentistry Company: Ohio State Univ., College of Dentistry, Dept. of Restorative & Prosthetic Dentistry Address: 3005S Postle Hall, 305 West 12th Ave. P.O. Box 182357 Columbus OH 43218-2357 Treats: Adults, Kids Experience with: Cherubism Requires referral: Yes State: OH View Carol Morris Address 21287 Specialty: Orthopedic Surgery Company: Johns Hopkins Address: 601-N Caroline St Baltimore MD State: MD View Cary Mariash Address 46280 Specialty: Endocrinology Company: Indiana University Health Address: Methodist Medical Plaza North Indianapolis IN State: IN View Catherine Dinauer Address 6510 Specialty: Orthopedic Surgery Company: Yale-New Haven Children's Hospital-West Address: 20 York Street, Ste WP-2 New Haven CT State: CT View Cemre Robinson Address 6511 Specialty: Endocrinology Company: Yale University School of Medicine Treats: kids State: CT View Charles Kim Address 10016 Specialty: Acupuncture, Integrative Medicine, Pain Medicine Company: NYU Center for Musculoskeletal Care Address: 333 E. 38TH STREET 6TH FLOOR New York, NY 10016 Phone Number: 646-501-7200 Fax: 646-501-7432 Experience with: FD, MAS Requires referral: Unknown State: NY View Charles Soparker M.D. Address 77098 Specialty: Cosmetic and Reconstructive Eye Surgery Company: Plastic Eye Surgery Assoc., PLLC Address: 3730 Kirby Drive, #900 Houston TX 77098 Website: http://www.plasticeyesurgery.com Phone Number: 713-795-0705 Treats: Adults, Kids Experience with: FD, MAS, Cherubism Requires referral: Unknown State: TX View Christopher Sperati Address 21287 Specialty: Pathology Company: Johns Hopkins Hospital Address: 600 N Wolfe Street Baltimore MD State: MD View Craig Dufresne M.D. Address 20815 Specialty: Craniofacial Surgery Company: Craig R. Dufresne, MD, FACS Address: 5530 Wisconsin Ave. Suite 1235 Chevy Chase MD 20815 Website: http://www.cdufresnemd.com Phone Number: 301-654-9151 Fax: 301-654-9727 Treats: Adults, Kids Experience with: FD, MAS, Cherubism Requires referral: No State: MD View Daniel Handel Address 80204 Specialty: Hospice and Palliative Medicine Company: Denver Health Medical Ct Address: Division of Palliative Medicine 777 Bannock St Denver, CO 80204 Phone Number: (303) 602-2714 Treats: Adults, Kids Requires referral: Unknown State: CO View David Weber Address 14642 Specialty: Endocrinology Company: Golisano Children's Hospital Address: Division of Endocrinology and Diabetes Pediatric Bone Health Program Golisano Children's Hospital University of Rochester School of Medicine & Dentistry Golisano.urmc.edu/pedsbonehealth Website: http://Golisano.urmc.edu/pedsbonehealth Phone Number: 585-275-7744 Treats: Kids State: NY View Deanna Adkins Address 27708 Specialty: Endocrinology Company: Duke Children's and WakeMed Children's of Raleigh State: NC View Dempsey Springfield, M.D. Address 2114 Specialty: Orthopedic Surgery Company: Massachusetts General Hospital Orthopedic Associates Address: Yawkey 3B, 55 Fruit Street Boston, MA 02114 Phone Number: 617.724.3700 Fax: 617.643.1227 Treats: Adults, Kids Experience with: FD, MAS Requires referral: Yes State: MA View Dennis Styne M.D. Address 95817 Specialty: Endocrinology Company: UC Davis Children's Hospital Address: Glassrock Bldg 2521 Stockton Blvd. Sacramento, CA 95817 Phone Number: 916-734-3112 Treats: Kids Experience with: FD, MAS Requires referral: No State: CA View Dominic Femino Address 91010 Specialty: Orthopaedic Surgery Company: City of Hope Department of Orthopedic Surgery State: CA View Doug Klein Specialty: Orthodontics Company: Dr. Doug Klein Orthodontic Specialists Address: 601 First St. Lake Oswego, OR 97034 Phone Number: 503.636.8491 Treats: Adults, Kids Experience with: Cherubism Requires referral: No State: OR View Douglas Letson Address 33612 Specialty: Orthopedic Pathology Company: Moffitt Cancer Center State: FL View Dr. Syed Faisal Ahmed Specialty: Endocrinology Address: Dr. Syed Faisal Ahmed Pediatric endocrinologist Royal Hospital for Children Glasgow, Scotland Treats: Kids Experience with: FD, MAS State: INTL View Edward Hsiao M.D. Address 94143 Specialty: Endocrinology Company: Division of Endocrinology and Metabolism - UCSF Address: 400 Parnassas Ave., Suite A550 UCSF Box 1222 San Francisco, CA 94143 Phone Number: 415-323-2350, 415-476-9732 Fax: 415-353-2337 Treats: Adults Experience with: FD, MAS Requires referral: No State: CA View Emily Christison-Lagay Address 6850 Specialty: Orthopedic Surgery Company: Yale Pediatric Specialty Center/Pediatric Surgery Address: 747 Belden Avenue Norwalk CT Treats: kids State: CT View Eric Rush Address 68198-5450 Specialty: Genetics, Orthopedic surgery Company: Munroe-Meyer Institute of Genetics and Rehabilitation Address: 985450 Nebraska Medical Center Omaha NE State: NE View Erica Eugster M.D. Address 46202 Specialty: Endocrinology Company: Riley Hospital for Children Address: 702 Barnhill Dr. Rm. 5960 Indianapolis IN 46202 Phone Number: 317-274-3889 Fax: 317-274-3882 Treats: Kids Experience with: FD, MAS Requires referral: Yes State: IN View Erik Imel M.D. Address 46202 Specialty: Endocrinology Company: Indiana University, School of Medicine Address: Division of Endocrinology 541 N. Clinical Dr., CL 459 Indianapolis IN 46202 Phone Number: 317-274-1339 Fax: 317-278-0658 Treats: Adults, Kids Experience with: FD, MAS Requires referral: Yes State: IN View Ernesto Ippolito M.D. Address 191 Specialty: Orthopedics Company: University of Rome Tor Vergata Address: Via Montpellier 1 Rome Italy 00191 Phone Number: 0039-06-20903 Treats: Adults, Kids Experience with: FD, MAS Requires referral: No State: INTL View Felasfa Wodajo Address 22031 Specialty: Orthopedic Surgery Company: Virginia Cancer Specialists Address: 8503 Arlington Blvd., Suite 400 Fairfax VA State: VA View Francis Glorieux M.D. Address H3G 1A6 Specialty: Genetics Company: Shriners Hospital for Children Address: 1529 Cedar Ave. Montreal Q H3G 1A6 Canada Phone Number: 514-849-7685 Fax: 514-842-5581 Treats: Kids Experience with: FD, MAS Requires referral: No State: INTL View Francis Y. Lee Specialty: Orthopedics Company: Columbia University College of Physicians & Surgeons Address: New York, NY Phone Number: Appointments:212-305-4565, Office: 212-305-3293 Treats: Adults, Kids Experience with: FD, MAS Requires referral: Unknown State: NY View Frederick Singer M.D. Address 90404 Specialty: Endocrinology Company: John Wayne Cancer Institute Address: 2200 Santa Monica Blvd. Santa Monica, CA 90404 Phone Number: 310-582-7117 Treats: Adults, Kids Experience with: FD, MAS Requires referral: Unknown State: CA View Gail Chorney M.D. Address 10003 Specialty: Orthopedics Company: Gail Chorney M.D. Address: 301 East 17th St., Suite 413, New York, New York 10003 Phone Number: 212-598-6211 Fax: 212-598-7625 Treats: Kids Experience with: FD, MAS Requires referral: Yes State: NY View Gerhard Maale Address 75093 Specialty: Orthopedic Surgery Company: Dallas Fort Worth Sarcoma Group Address: 4708 Alliance Boulevard Plano TX State: TX View Henry Bone M.D. Address 48236 Specialty: Endocrinology Company: Michigan Bone & Mineral Clinic, PC Address: Suite 260 22201 Moross Rd. Detroit MI 48236 Phone Number: 313-640-7700 Fax: 313-640-4766 Treats: Adults, Kids Experience with: FD, MAS Requires referral: Yes State: MI View Herbert Schwartz Address 37232 Specialty: Orhtopedic Pathology Company: Vanderbilt Orthopaedic Institute Address: 1215 21st Ave S Nashville TN State: TN View Howard Dorfman M.D. Address 10467 Specialty: Orthopedic Pathology Company: Montefiore Medical Center Address: Montefiore Medical Center 111 East 210th St. Bronx NY 10467 Phone Number: 718-920-5622 Experience with: FD, MAS, Cherubism Requires referral: Yes State: NY View James Beaty Address 38138 Specialty: Orthopedic Surgery Company: University of Tennessee - Campbell Clinic Address: 1400 S Germantown Road Germantown TN Treats: kids State: TN View James Mooney Address 29425 Specialty: Orthopaedic Surgery Company: Medical University of South Carolina Address: 135 Rutledge Avenue Charleston SC State: SC View Jan de Lange M.D. Address 1100 DD Specialty: Oral and Maxillofacial Company: Academic Center for Dentistry Address: Dept. of Oral & Maxillofacial Muerigbeerrygdreef 9 Amsterdam 1100 DD The Netherlands Treats: Adults, Kids Experience with: Cherubism Requires referral: No State: INTL View Janice Lee M.D. Specialty: Craniofacial Surgery Company: University of California, San Francisco Address: 513 Parnassus Ave., Rm C-522 San Francisco CA 94143 Phone Number: 415-476-2271 Treats: Adults, Kids Experience with: FD, Cherubism Requires referral: No State: CA View Jay Cohen Address 38119 Specialty: Endocrinology Company: The Endocrine Clinic Address: 5659 South Rex Road Memphis TN State: TN View Jeffrey A Fearon, MD Address 75230 Specialty: Craniofacial Surgery, Plastic and Reconstructive Surgery Company: The Craniofacial Center Address: 7777 Forest Lane, C-700 Dallas, TX 75230 Website: http://www.thecraniofacialcenter.com Phone Number: 972-566-6464 Treats: Adults, Kids Experience with: FD, MAS, Cherubism Requires referral: Unknown State: TX View Jeffrey Kim Address 20007 Specialty: Otolaryngology Company: Department of Otolaryngology Address: Georgetown University Hospital 1 Gorman Washington, DC 20007 Phone Number: 202-444-8186 Fax: 877-826-5501 Treats: Adults, Kids Experience with: FD Requires referral: Yes State: DC View Jeffrey Martus Address 37232-9565 Specialty: Orthopedic Surgery Company: Children's Hospital at Vanderbilt Address: 2200 Children's Way Nashville TN State: TN View Jeffrey Posnick Address 20815 Specialty: Plastic and Reconstructive Surgery, Oral and Maxillofacial Company: Center for Facial Plastic Surgery State: MD View Jennifer Dietrich Address 77030 Specialty: Endocrinology Company: Texas Children's Hospital, Clinical Care Center Treats: kids State: TX View Next »

Patients: Please deliver or mail the Physician Referral Application to your doctor with a personal request that she or he participate.

Physicans: Please complete and submit a Physician Referral Application to the FD Foundation by email or postal mail along with your CV. Individuals are listed after review by our Medical Advisory Council, a diverse advisory body includes doctors and researchers who are the experts from around the world in these diseases.

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