The Fibrous Dysplasia Foundation maintains a database of doctors with experience treating Fibrous Dysplasia, McCune-Albright Syndrome and Cherubism. It includes a wide range of experienced doctors who treat children and adults, including but not limited to: orthopedics, endocrinology, craniofacial surgery, pain management, and dentistry.
In order to be listed, doctors must complete an application with information about their training, clinical experience and relevant publications. This application is reviewed by the Medical Advisory Board of the Foundation before individuals are listed.
To nominate a doctor for inclusion, please click here to go to our nomination form.
If you are a medical professional and you wish to be included in the database, please click here to go to our application.
Division of Endocrinology and Diabetes Dr. Syed Faisal Ahmed
Pediatric Bone Health Program
Golisano Children's Hospital
University of Rochester School of Medicine & Dentistry
Royal Hospital for Children
Division of Endocrinology and Diabetes
Dr. Syed Faisal Ahmed
Patients: Please deliver or mail the Physician Referral Application to your doctor with a personal request that she or he participate.
Physicans: Please complete and submit a Physician Referral Application to the FD Foundation by email or postal mail along with your CV. Individuals are listed after review by our Medical Advisory Council, a diverse advisory body includes doctors and researchers who are the experts from around the world in these diseases.