Health insurance can be a hassle to navigate for even the most basic medical concerns, but adding the complex, multi-layered care of a rare disease like FD/MAS can make insurance feel like a true nightmare.
FDF Board Member, Leah Suprise has become quite adept at reading the fine print and negotiating coverage over the years as the caregiver for her 11 year-old daughter who has MAS. Join us for a conversation with Leah, hear her family’s story, and walk away armed with some tips and tricks for working with health insurance and navigating the best care possible for yourself and your loved one.
Please register beforehand to secure your space. Registration is free and open to the public. Questions may be submitted ahead of time and the entire session will be recorded and shared for free via our website and social platfroms.